What You Can Do For Rare Disease Day

by Evil HR Lady on February 28, 2017

February 28 is Rare Disease Day. This year’s theme is With research, possibilities are limitless.” This is true, but, unfortunately, research is also expensive and difficult. What can we do to help cure rare diseases?

Consider the Possibility

Imagine if you or a loved one had a disease where information about it was rare and hard to come by. Where your doctor was just as bewildered as you are. It’s a frustrating position to be in, but most people don’t think it will happen to them—after all, rare diseases are (by definition) rare.

While you have a minuscule chance of contracting any single rare disease, there are so many rare diseases that your chances of being affected by at least one is pretty high. 30 million people in Europe have at least one rare disease.

If you have been diagnosed with a rare disease, you know how frustrating getting information can be. If you just have an undiagnosed problem, that is stumping your physicians, it can be even worse. You understand that the unthinkable can and does happen to you and people you love. So, what can you do to help fight rare diseases?

To keep reading, click here: What You Can Do For Rare Disease Day

(I realize this is not my normal topic, but it is a cause I support!)

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